Monday, September 19, 2011

Mito and Neuro

Our gray matter, otherwise know as the brain, needs energy to work.  To receive and send all parts of the body messages....really, it's a miracle.

At one point, it was thought all persons with a mitochondrial dysfunction had brain involvement.  The opinion has changed, as more children are diagnosed with no cognitive delays.

In Bricen's case, his brain is affected.  He is cognitive delayed; at the age of five, he operators at about a 2 1/2 - 3 year old level.

In addition, he suffers from generalized absent seizures.  The seizures raged out of control this summer; at one time he was on three different medicines at once.

Seizure meds taken twice a day

He learned at an early age to give himself meds - he thought it fun


Every 30 minutes a child is born that will develop a mitochondrial dysfunction by the age of ten.  The number of  children dying from mito equals to or is more than die from childhood cancer.  

1 comments:

  1. KayTar likes to give herself meds, too, through her g-button!

    ReplyDelete